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| Program Data Center Washington University in St. Louis The Family Blood Pressure Program (FBPP) is a large multi-center genetic study of high blood pressure and related conditions in multiple ethnic groups. The program in turn consists of four multi-center Networks: GenNet, GENOA, HyperGEN and SAPPHIRe. The FBPP has been funded since 1995 by the National Heart, Lung, and Blood Institute (NHLBI, an institute of the National Institutes of Health). The Division of Biostatistics at Washington University School of Medicine serves as the Program Data Center (PDC) for the FBPP. Core variables have been standardized across the four Networks (e.g., Blood Pressure measured with Dinamap and anonymous marker genotyping by the Mammalian Genotyping Service (MGS) in Marshfield) so as to increase the sample size of the pooled data. Pooling data across the four Networks and facilitating the use of the pooled data sets are the primary functions of the PDC. The FBPP is making this unique data base available in increments to all investigators interested in hypertension and/or cardiovascular research. These data are freely available for research purposes. Biological materials as well as extensive additional data are also available for collaborative research. If interested in requesting data, click on the "FBPP Public Data" link below. The FBPP is participating in an Ontology Project with NHLBI and the National Cancer Institute (NCI) to catalog the FBPP's variables in the caDSR. The caDSR is an online repository hosting a variety of information about registered projects, including variables that are used in the FBPP. Each variable is stored as one Common Data Element (or CDE) that describes the variable’s meaning, text, and allowable values and/or limits. The caDSR uses the ISO 11179 standard and controlled biomedical terminology to ensure that a CDEs meaning is clear and unambiguous and to prevent duplication of data elements. The caDSR was built and maintained by NCI, which operates it as a public resource for the biomedical community. For more information please see the NCICB website or the following paper in the Journal of Biomedical Informatics.If you would like to see a listing of the FBPP’s CDEs, click here. On the left side of the page, expand ‘NHLBI’ and then expand ‘Classifications’ to find the FBPP. For more information on this study, contact the PDC at fbpp-pdc
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wubios.wustl.edu. Password protected directories are highlighted in red italics. (FBPP investigators needing a password should contact the PDC).