New Release!
Eff. 12/07/2007

For a description of all FBPP Database variables, click here.
 

Program Data Center


Family Blood Pressure Program
Publicly Accessible Database on Hypertension
The FBPP investigators with support from the National Heart, Lung, and Blood Institute (NHLBI), have collected extensive clinical data and biological materials from the participants in the FBPP. This phenotypically and genetically well-characterized population represents a valuable scientific resource. Optimizing the informativeness and use of this resource on a scale commensurate with its importance will require a large and concerted effort, which may exceed the research capacity of currently available FBPP investigators. The investigators recognize their responsibility to the public in general, and to the scientific community in particular, to encourage rapid scientific progress by using these resources, subject to appropriate Terms and Conditions.

Clinical data collected by the FBPP and data derived from biological samples have been stripped of all personal identifiers, but the familial nature and the geographic specificity of the sites at which the study participants were drawn requires vigilant efforts to avoid the inadvertent or deliberate individual identification of some participants. To protect the confidentiality and privacy of these participants and their families, investigators granted access to these data and materials must adhere to certain Terms and Conditions. Failure to comply with them can result in denial of further access to data and samples from FBPP and other studies supported by the NHLBI. Violation of the confidentiality requirements of this agreement is considered a breach of confidentiality and may leave requesting investigators liable to legal action on the part of FBPP participants and their families, or the universities collaborating in the FBPP, or the U.S. Government.

The FBPP investigators have made a substantial and long term contribution in establishing and maintaining a database of high quality. The investigators encourage appropriate collaborative relationships of outside investigators with the FBPP, and to ensure that the contribution of the FBPP investigators is appropriately acknowledged. Part of the data are readily available without requiring collaboration (Public Access Data Request Form ). If access to complete data and/or biological materials is sought, we encourage collaboration (Collaboration Request Form ). The FBPP further seeks to promote the development of valuable discoveries and inventions beneficial to the public health based upon use of the FBPP repository of valuable materials and data.

Public Access Data Request Form Collaboration Request Form

  For more information contact fbpp-pdcwubios.wustl.edu
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